Showing posts with label Breast Cancer. Show all posts
Showing posts with label Breast Cancer. Show all posts

Sunday, November 20, 2011

First Champagne Bottle of the Day

You’ve heard about Pinocchio, the Velveteen Rabbit, and probably even Bill… but once upon a time there was this book that I kept talking about writing (for like 9 months) and then went on and on about editing (for like 9 more months)… and well, this is where that champagne bottle comes in handy. And I’m not talking about smashing the bottle on my book like it’s some kind of a yacht.

  1. It seems like a waste of champagne.
  2. What if Nemo finds some of the broken glass and gets hurt?
  3. It would get the pages of my book all wet.

What I’m talking about, rather, is that it’s five o’clock where I am because here I am, holding my very own real live book!

Yeah, I figure you just looked at your watch, not to mention the posting time on this post and then you re-read the title (which clearly foreshadows another bottle of champagne) and now you’re probably all worried about me putting an eye out with all those popping corks, and are most likely pulling out your cell phones to dial up the triple (burp) oops, I mean double A for me. But hold on just a second… I’m not as think as you drunk I am. And anyway, I do in fact have a valid poetic license to wield that five o’clock at whim.

With that said, it’s time to pop a cork, pour the bubbly and let it overflow a bit. Because SHAKEN NOT STIRRED… A CHEMO COCKTAIL is now a real live book! Here’s the birth announcement, I mean, when it was Facebook official:

At 12:34 on 11/11/11 I just pressed publish. Whoa. It’s on CreateSpace now; will take 5-7 days to show up on Amazon.com. How fun not to mention freaking poetic is that?! Take that, cancer. BAM

Fast forward three days, to somewhere around five o’clock on the 14th of November and here’s the Bar Mitzvah announcement when SHAKEN NOT STIRRED… A CHEMO COCKTAIL came of age and got listed on Amazon (AKA Nirvana):

Whoa…just whoa…Amafreakingzon!! Not gonna lie, I feel a little bit like Steve Martin’s character in The Jerk, when he finally made it into the phone book: “The new phone books are here! The new phone books are here!” (Click here to see the classic scene.)

And yeah, that’s about pretty much how it went down at the Evanshire when I popped open this box:

Minus, of course, the sniper. Unless, of course, you’re also waving your poetic license around, in which case the sniper is obviously a metaphor for cancer and chemo. Which I think is pretty clever on your part. So well done!

And now that I’ve buttered you up, if you feel like ordering a copy of my book by click here. And just know this, every time somebody presses “Add to Cart” on Amazon, the proverbial champagne cork pops and the bubbles start overflowing. So thanks for that. It’s pretty freaking fabulous of you.

Cheers and love,

Joules

Wednesday, August 3, 2011

Where Are All The Tennis Balls?

I’m pretty fast when it comes to chasing tennis balls. I’ve been called “The Energizer Bunny” by some of my opponents. Others have told me I’m like a mosquito at the net—at which point I have to mentally disengage my super imagination powers so as not to see their racquets coming at me as giant fly swatters.

The point is, I’ve been conditioned since music class in elementary school to follow the bouncing ball.

Therefore I have never been a runner…until now. Well, I’m almost a runner but not quite. Close though.

My license plate says “Eat. Sleep. Tennis.” And that’s pretty much how things roll with me and my gang in the Evanshirehood. Normally. But you know me and normal. Hardly ever on the same page, let alone in the same sentence connected by a conjunction junction whose function is to hook up words and make them function and such. Anyway, it was recently brought to my attention that I have barely graced the poor tennis courts behind the Evanshire this summer. Last Thursday I hosted a girls night out and invited my long lost tennis girlfriends. When they started arriving at the door with bottles of wine they all had this similar look on their faces. It was like they were trying to place where they’d seen me before.

It’s understandable. After I finished writing my manuscript, SHAKEN NOT STIRRED…A CHEMO COCKTAIL, I decided to take off this spring and summer, from my tennis addiction, to focus on editing and publishing my book. (And promoting The SCAR Project coming to Cincinnati this fall, which has been crazy busy fun.) So that’s why my tennis girlfriends were being so ridiculous, acting like we were meeting for the first time, and as if the wine bottles were house warming gifts, instead of a case of catching up.

Good times.

While working on my book and with the SCAR Project I’ve also been doing a lot of soul searching. Trying to figure out what to do with this second chance I’ve been given. Life, take two. What. A. Gift.

I’ve been digging deep into celebrating that gift, living out loud, laughing from the belly, spending myself loving God and others, following my Redheads chasing their dreams, and having the time of my life chasing down my own by writing a book. It’s my postcard from the other side of cancer/chemo to my survivor sisters. Been there, done that, had to buy a new t-shirt, wish they were here, on this side, too.

But wishing doesn’t seem like it’s nearly enough.

I’m pretty sure the only reason I’m still here is there is still more I’m supposed to do. I have this keychain I picked up at the Race for the Cure that says, “I am the Cure.” It eggs me on to do something. Like I said, I’m trying to figure out what.

All I know is that my daughter Amanda is supposed to start having mammograms when she is 23 because of me. She turns 21 in January.

Maybe I started running because I’m in a hurry. There’s something terribly encouraging about forward motion. Even if it’s something as simple as putting one foot in front of the other.

I have a 4-mile course in my neighborhood. One of these days I’m going to run the whole thing and in the process will have psyched my body into thinking a 5K is a piece of cake. This is a goal of mine. But it’s easier said than done. First I’m going to have to run up the Oregon Pass hill.

One thing I’ve learned about running, is that running downhill is way more fun that running uphill. I generally walk up the hills. But even then I have to channel my little engine when it comes to Oregon Pass.

I know I could easily flip my course, with Oregon Pass on the downhill, but we have speed limits in our neighborhood.

The hardest thing about running is breathing. Sometimes I forget to. Then when I think about it too hard I forget how. I’m working on this. Trying to pace myself, find a relaxed running form, spend time praying for my peeps which makes me happy thinking about them, and keeping my eyes wide open for beauty and breathing deeply as I take it in.

Continuing my 1000 gifts, here are some of the beautiful things on my runs:

#134 the song, “Beautiful Things” by Gungor, on my Chemo Cocktail Soundtrack that I run to

#135 iMapMyRun iPhone App

#136 Running downhills

#137 weeping willow trees

#138 morning doves

#139 sunshine

#140 wind in my hair

#141 H-2-OH

#142 the Elvis statue in some neighbor’s garden

#143 Thinking about friends as I pass their houses

#144 My “run.” necklace

#145 Sweating out chemo toxins

#146 Moving forward

#147 Shade trees

#148 best running socks ever

#149 fireflies when I run when the sun is setting

#150 sometimes closing my eyes and raising my hands in the air like I’m flying

#151 trying to find a running groove

#152 finishing a run

#153 making ice cold watermelon juice right after

#154 followed by a cold shower

#155 I thought I could and I just did it

#156 gaining confidence

#157 building fitness

#158 sipping satisfaction

#159 experiencing enjoyment

#160 Eric Liddell said when he ran he felt God’s pleasure. This is what I’m after. Not just in running but in everything I do. And I especially feel God’s pleasure when I write.

#161 that I get to have fun playing with words

Thursday, July 7, 2011

The SCAR Project documentary “Baring It All” On Style Network this Saturday at 9 pm.

Tune in this Saturday at 9 pm to the Style Network’s world premiere of “Baring It All”—Patricia Zagarella’s groundbreaking documentary about the Pulitzer nominated SCAR Project.

“Baring It All” follows fashion photographer David Jay, into the worlds of four young breast cancer survivors, exploring their journeys and being photographed for the SCAR Project. “Baring It All” portrays what: “Surviving Cancer. Absolute Reality.” Is really all about, for them (and for the more than 10,000 young women like them, who are diagnosed each year).

“Baring It All” uncovers what’s beneath the pink ribbons.

In the rolling out of the red carpet for Saturday night’s premiere, I interviewed “Baring It All” filmmaker Patricia Zagarella. So without further ado, how about some lights, camera…and action (cue up the first question, enter Patricia Zagarella for the answer parts):

Q: How did you find out about The SCAR Project?

A: David Jay and I have a mutual friend, who was visiting NY from Australia. She randomly bumped into David while on her visit and he told her about the Scar Project. She then sent me a link and my co-producer, Nicola and I, were blown away by the photographs – the beauty and the pain, every image and every woman’s eyes screamed a different story we wanted to learn more.

Q: What inspired you to start filming the documentary?

A: When I first saw the SCAR Project I was captivated by the raw reality conveyed by his photos. Striking and beautiful, yet confronting and almost brutal, they pushed me to a place I normally contentedly avoided. I was both shocked and saddened, but drawn to the images like a magnet. Despite that the photos spoke volumes, I had a barrage of questions screaming in my head, not only about the young women in the photographs but also about the photographer: Who was he? Why was a successful fashion and beauty photographer photographing young breast cancer survivors? Why did he embark on this journey and what motivates him to continue?

Fascinated, I reached out to David Jay – who reached back with enthusiasm and warmth. I then met a genuinely kind and caring man, whose world had been turned upside down when confronted by a close friend’s body after a mastectomy. He told me that he dealt with it the only way he knew how, by taking her picture. And the rest is history.

Q: Can you describe the process, and the emotions of filming such painful images? (ones that most breast cancer patients haven’t seen before they have a mastectomy–hopefully The SCAR Project will change that.)

A: We were an all female team during the photo shoot sessions, our goal was to be unobtrusive and document the event, what we experienced was a palpable transformation taking place before us. Women would come to the door broken and nervous and by the time they left, they had a renewed sense of pride, hope and strength. Every single woman exuded beauty that came from her resolve and attitude, which David captured perfectly.

It was a very special experience, albeit a tough one, being able to capture this transformation, to be able to share in the anguish, the pain, the tears and the laughter.

Q: What were some of the hi-los of filming this project? What surprised you most about filming “Baring It All”?

A: Meeting and spending time with these amazing, strong young women has been an incredible high. I have been touched in a profound way by all the women we met, and I’ve learned so much from them – celebrate life and live in the moment. I remind myself of that daily.

The lows have obviously come when confronted with beautiful young girls struggling to beat this horrible disease.

What surprised me most was the enlightened attitude of such young women and their strength in the face of their mortality.

Q: How did you get into filming?

A: I started working in TV & film in Australia after graduating from University. My first job was working at a TV station and it just went from there.

Q: What do you consider your particular calling in the film industry to be?

A: I enjoy producing, finding compelling stories and character, and then finding the right team to execute that story. I really love meeting people and learning about them, and under the pretense of filmmaking I get to ask lots of questions most people are afraid to.

Q: What other film work have you done?

A: I started working in narrative features, but then about 7 years ago I was presented with the opportunity to co-produce a documentary, and from that point on I was hooked. I loved telling real stories by real people. Who needs a script, real life is far more compelling, heart-warming, and heartbreaking.

Q: The doc was originally titled “Don’t look away”? How did it go from there to “Baring It All?”

A: The doc was originally titled “Don’t Look Away”, a title Nicola my co-producer came up with. We decided on that title early on because people’s initial reaction at hearing about the subject and photos was to look away. The entire message and point of the project was to remove the stigma and normalize something that so many women undergo but no one ever sees or talks about. We wanted people to look at the photos, look at the women, at the scars, and at their eyes. The name was changed when the Style Network came on board as they felt that “Don’t Look Away” didn’t adequately describe what the film was about. After much back and forth, we settled on “Baring It All” as the new title.

Q: How did the Style Network come on board to air the documentary?

A: Two great women, Beth and Andrea from Remarkable Content took my trailer to the Style Network about a year before they actually came on board. The VPs at Style thought it was an important story to tell and one that their viewers could connect with, however one-off documentaries were completely out of the realm of their usual programming that it just didn’t work. They came back to me about a year after our initial conversation and the VPs had come up with an over-brand series called Style Exposed, which would include one-off documentaries. “Baring It All” is the first in the Style Exposed series. Hopefully it’s a success for Style and they continue to produce one-off documentaries with heart.

Q: Who/what/where are you going to watch the premiere?!

A: I will be watching the premiere with David, Joanie, Nicola and my crew at David’s studio on Saturday night.

Q: When/how will the dvds be available?

A: The DVDs will be available on July 25th through Amazon. The SCAR Project, Volume 1 book is also available on Amazon.

Q: How would you articulate the message you hope people get when they view your doc and the SCAR Project?

A: I want people to see that there is true beauty in strength and hope in the face of despair. There’s power in optimism and it’s ok to have scars and to look at them and let people see them.

In line with the SCAR Project message, the goal is to raise awareness and let people know that young women can and do get breast cancer. Early detection is the best prevention, therefore the more people who see the film or the SCAR Project photos the bigger the impact.

Q: How can people follow you, support the amazing things you are doing like this documentary?

A: People can keep up to date with my work via my website atwww.lostinvision.com or via Facebook.

Q: What are you doing next?

A: I’m developing a project that deals with alternatives to incarceration, with a focus on young women who are at risk, and we hope to help transform their lives before it’s too late.

Q: Not really a question, but I’d just like to thank Patricia for a brilliant interview and also say “go break a leg!” in re: the “Baring It All” premiere this Saturday night. And I’ll just go ahead and say BRAVO! because I know it’s going to, as The SCAR Project intends: Raise public consciousness of early-onset breast cancer, raise funds for breast cancer research/outreach programs and help young survivors see their scars, faces, figures and experiences through a new, honest and ultimately empowering lens. So kudos Patricia. Cheers and kudos.