Thursday, July 7, 2011

The SCAR Project documentary “Baring It All” On Style Network this Saturday at 9 pm.

Tune in this Saturday at 9 pm to the Style Network’s world premiere of “Baring It All”—Patricia Zagarella’s groundbreaking documentary about the Pulitzer nominated SCAR Project.

“Baring It All” follows fashion photographer David Jay, into the worlds of four young breast cancer survivors, exploring their journeys and being photographed for the SCAR Project. “Baring It All” portrays what: “Surviving Cancer. Absolute Reality.” Is really all about, for them (and for the more than 10,000 young women like them, who are diagnosed each year).

“Baring It All” uncovers what’s beneath the pink ribbons.

In the rolling out of the red carpet for Saturday night’s premiere, I interviewed “Baring It All” filmmaker Patricia Zagarella. So without further ado, how about some lights, camera…and action (cue up the first question, enter Patricia Zagarella for the answer parts):

Q: How did you find out about The SCAR Project?

A: David Jay and I have a mutual friend, who was visiting NY from Australia. She randomly bumped into David while on her visit and he told her about the Scar Project. She then sent me a link and my co-producer, Nicola and I, were blown away by the photographs – the beauty and the pain, every image and every woman’s eyes screamed a different story we wanted to learn more.

Q: What inspired you to start filming the documentary?

A: When I first saw the SCAR Project I was captivated by the raw reality conveyed by his photos. Striking and beautiful, yet confronting and almost brutal, they pushed me to a place I normally contentedly avoided. I was both shocked and saddened, but drawn to the images like a magnet. Despite that the photos spoke volumes, I had a barrage of questions screaming in my head, not only about the young women in the photographs but also about the photographer: Who was he? Why was a successful fashion and beauty photographer photographing young breast cancer survivors? Why did he embark on this journey and what motivates him to continue?

Fascinated, I reached out to David Jay – who reached back with enthusiasm and warmth. I then met a genuinely kind and caring man, whose world had been turned upside down when confronted by a close friend’s body after a mastectomy. He told me that he dealt with it the only way he knew how, by taking her picture. And the rest is history.

Q: Can you describe the process, and the emotions of filming such painful images? (ones that most breast cancer patients haven’t seen before they have a mastectomy–hopefully The SCAR Project will change that.)

A: We were an all female team during the photo shoot sessions, our goal was to be unobtrusive and document the event, what we experienced was a palpable transformation taking place before us. Women would come to the door broken and nervous and by the time they left, they had a renewed sense of pride, hope and strength. Every single woman exuded beauty that came from her resolve and attitude, which David captured perfectly.

It was a very special experience, albeit a tough one, being able to capture this transformation, to be able to share in the anguish, the pain, the tears and the laughter.

Q: What were some of the hi-los of filming this project? What surprised you most about filming “Baring It All”?

A: Meeting and spending time with these amazing, strong young women has been an incredible high. I have been touched in a profound way by all the women we met, and I’ve learned so much from them – celebrate life and live in the moment. I remind myself of that daily.

The lows have obviously come when confronted with beautiful young girls struggling to beat this horrible disease.

What surprised me most was the enlightened attitude of such young women and their strength in the face of their mortality.

Q: How did you get into filming?

A: I started working in TV & film in Australia after graduating from University. My first job was working at a TV station and it just went from there.

Q: What do you consider your particular calling in the film industry to be?

A: I enjoy producing, finding compelling stories and character, and then finding the right team to execute that story. I really love meeting people and learning about them, and under the pretense of filmmaking I get to ask lots of questions most people are afraid to.

Q: What other film work have you done?

A: I started working in narrative features, but then about 7 years ago I was presented with the opportunity to co-produce a documentary, and from that point on I was hooked. I loved telling real stories by real people. Who needs a script, real life is far more compelling, heart-warming, and heartbreaking.

Q: The doc was originally titled “Don’t look away”? How did it go from there to “Baring It All?”

A: The doc was originally titled “Don’t Look Away”, a title Nicola my co-producer came up with. We decided on that title early on because people’s initial reaction at hearing about the subject and photos was to look away. The entire message and point of the project was to remove the stigma and normalize something that so many women undergo but no one ever sees or talks about. We wanted people to look at the photos, look at the women, at the scars, and at their eyes. The name was changed when the Style Network came on board as they felt that “Don’t Look Away” didn’t adequately describe what the film was about. After much back and forth, we settled on “Baring It All” as the new title.

Q: How did the Style Network come on board to air the documentary?

A: Two great women, Beth and Andrea from Remarkable Content took my trailer to the Style Network about a year before they actually came on board. The VPs at Style thought it was an important story to tell and one that their viewers could connect with, however one-off documentaries were completely out of the realm of their usual programming that it just didn’t work. They came back to me about a year after our initial conversation and the VPs had come up with an over-brand series called Style Exposed, which would include one-off documentaries. “Baring It All” is the first in the Style Exposed series. Hopefully it’s a success for Style and they continue to produce one-off documentaries with heart.

Q: Who/what/where are you going to watch the premiere?!

A: I will be watching the premiere with David, Joanie, Nicola and my crew at David’s studio on Saturday night.

Q: When/how will the dvds be available?

A: The DVDs will be available on July 25th through Amazon. The SCAR Project, Volume 1 book is also available on Amazon.

Q: How would you articulate the message you hope people get when they view your doc and the SCAR Project?

A: I want people to see that there is true beauty in strength and hope in the face of despair. There’s power in optimism and it’s ok to have scars and to look at them and let people see them.

In line with the SCAR Project message, the goal is to raise awareness and let people know that young women can and do get breast cancer. Early detection is the best prevention, therefore the more people who see the film or the SCAR Project photos the bigger the impact.

Q: How can people follow you, support the amazing things you are doing like this documentary?

A: People can keep up to date with my work via my website or via Facebook.

Q: What are you doing next?

A: I’m developing a project that deals with alternatives to incarceration, with a focus on young women who are at risk, and we hope to help transform their lives before it’s too late.

Q: Not really a question, but I’d just like to thank Patricia for a brilliant interview and also say “go break a leg!” in re: the “Baring It All” premiere this Saturday night. And I’ll just go ahead and say BRAVO! because I know it’s going to, as The SCAR Project intends: Raise public consciousness of early-onset breast cancer, raise funds for breast cancer research/outreach programs and help young survivors see their scars, faces, figures and experiences through a new, honest and ultimately empowering lens. So kudos Patricia. Cheers and kudos.

Friday, July 1, 2011

Who's On Third? Check Second Base.

I wonder if I’m the only one who thought of this classic Abbott and Costello skit, when the new finding that mammograms actually DO cut cancer deaths by a third, were released this Tuesday. Here’s the MSNBC lead for the story:
Mammograms can cut breast cancer deaths by a third

By Julie Steenhuysen

updated 6/28/2011 9:04:53 AM ET

CHICAGO — The longest-running breast cancer screening study ever conducted has shown that regular mammograms prevent deaths from breast cancer, and the number of lives saved increases over time, an international research team said on Tuesday. Read More…
This, less than two years after the US Preventative Task Force issued a report discouraging women under 50 from mammograms and self exams. Ironically, that report came out the same week my Mum was diagnosed with breast cancer after having a mammogram. Granted, she’s over 50, but it was her first mammogram. For one thing, my Mum hardly ever gets sick. I don’t even remember her having a cold the whole time I was growing up. But the real reason she had her first mammogram “after 50” was not because she was in sync with the government recommendations, but because she didn’t have insurance. Thankfully, my Mum happened to catch a news segment where The Little Red Door Cancer Agency of Indiana offered free mammograms… instead of the one with breaking news of the new government recommendations. She had 2 lumpectomies to remove the cancer the mammogram found, then 33 rounds of radiation, and is now, thankfully, cancer-free.

The truth is young women get breast cancer, too. This year alone, more than 10,000 women under the age of 40 will be diagnosed with breast cancer. Young women are often an overlooked group of women living with breast cancer. This despite the fact that breast cancer is the leading cause of cancer deaths in young women ages 15-40.

Is this partially because nobody’s been checking second base? Who’s on third indeed? Which one of those 10,000 young women wouldn’t want to be in the third whose lives are saved by early detection?

Thank God there were breast cancer organizations like Save the ta-tas, who saw through the circular argument of “Who’s on second?” and continued to stress breast awareness, encouraging self-exams and mammograms. My friend Julia Fikse, founder of Save the ta-tas, gave me permission to reprint an article she wrote in response to the new findings:
On November 17, 2009 The US Preventive Services Task Force released a statement that said women age 40 to 49 don’t need to have routine mammograms anymore and that breast self-exams aren’t recommended in general. The group found no evidence that self-exams reduce breast cancer death rates, and discouraged teaching women how to examine themselves.

This caused quite a stir, and many prominent organizations stood behind this statement. Not Save the ta-tas. We stood our ground that mammograms help women live longer if cancer is caught early, and if even one life is saved, mammograms are worthwhile. We also believe teaching women (and men) to examine breasts is also potentially life saving.

Yesterday, it was announced in an MSNBC article that Mammograms cut cancer deaths by a third!!! We want you to know of this important finding in case you cancelled your mammogram.

Get your mammogram, it really can save your life!!!
Now, it’s true that I’m practically a walking billboard for this message, not to mention, Save the ta-tas.
It’s also true that I wouldn’t be sitting here typing these words if I waited till I turned 50 to get my first mammogram.

Because I’m so happy to be here typing these words, I thought I’d share a few words about the mammogram that saved my life. So without further ado, here’s an excerpt from my upcoming book, SHAKEN NOT STIRRED . . . A CHEMO COCKTAIL:
(The following excerpt is from Chapter 3 – Help Me Out God)

I’d never had a mammogram before. PLEASE DO NOT PUT IT OFF until you’re 42 years old and find a lump in your breast, like I did.

Dr. Allen couldn’t find the spot at first. One would think that would be a good sign. At least, we tried to take it as one. I’m a small-framed person, and, to put it frankly, there is not a lot of room for a spot to hide. Maybe my simple prayer: “Out damn spot!” had been answered? Maybe I worked the spot out while I played tennis? Or maybe I had imagined it, after all.

That would’ve been awesome. That would’ve been the end of this story. And I’m not going to lie; there is part of me that would be OK with that. But that’s not how it happened. She eventually found the proverbial X.

Damn spot. It had been elusive due to rather awkward placement, right beneath the “milky way.”

I don’t know why, but I could tell Dr. Allen didn’t seem to like what she’d found. She said she thought we should do a mammogram and an ultrasound to “cover second base.” That was not what I expected her to say, at all. Then she picked up the phone and scheduled the tests for the next day.

I wasn’t scared yet. I had some adrenaline pumping, but not from jumping to conclusions. The things I’d heard about mammograms, and particularly, the squashing involved, made me cringe. I’d always experienced a sympathetic twinge of pain whenever I was with a group of women and the conversation uncomfortably shifted, to the subject of mammogram stories—once everyone’s birth stories were out of the way.

If you saw Casino Royale, you might remember a certain scene in which the most recent James Bond, Daniel Craig, took a few torturous knocks to the groin area. I had to close my eyes because I don’t like seeing people tortured. Or naked, really. And, especially, not being tortured while naked. The collective gasp from the men in the theater during that scene, told me it was one of those “need-to-know” scenes, that I didn’t need to know. They were obviously feeling his pain.

Stories about mammograms and the squashing involved had a similar effect on me. And my overactive imagination did not help things when it came to considering my own impending mammogram. If mammograms were a Facebook page I would not have been a fan. If there were such a thing as a dislike button, I would have pressed it. Yet, I needed to know what that damn spot was, so I didn’t have the mammogram “invite” removed from my events.

On Wednesday, my husband and I went to what is now the Mary Jo Cropper Breast Cancer Center at Bethesda North Hospital, in Cincinnati, to have the scheduled tests.

I couldn’t believe what a big deal my mammogram wasn’t.

In retrospect, it was probably harder on my husband than it was on me. I mean it. I found myself a tad distracted when the technician took out a Sharpie and drew an X right on the spot. Then she remarked that it was at 6 o’clock on my breast. I have to admit that I did appreciate the poetry of the whole X marking the spot. I think I had a lol moment, though, when she told me the placement in terms of a clock face. The spot was actually somewhere between 5:27 and 5:28—but I also round up. For some reason, this thought got a hold of my funny bone and wouldn’t let go, despite the gravity that kept trying to suck me in. And my funny bone is connected to my coping bone. This is where my head was while I placed my breasts in between the mammography plates that squished but not squashed me, and took X-rays of the X that marked the spot.

Dave was not finding himself lost in the poetry of the Sharpie’s X. He was watching his watch, and wearing out a path in the waiting room. He had no distraction; crosswords didn’t cut it. There was no scotch.

The ultrasound was lengthy, due in part to the aforementioned savvy of the spot. But the technician also happened to find two more spots, while searching for the X that marked the first damn spot.

After the tests I remember standing in a very small room while a couple of men in scrubs briefed Dave and me. They said the original spot was about a centimeter, the second was 0.7, and the third was 0.6. They said they all appeared to be solid masses—which didn’t sound good. But they tried to reassure us that it was not necessarily bad news. They recommended we biopsy them all, but stressed I should not go home thinking I have cancer. There were “not bad” solid masses those damn spots could be. We were not there yet. And I honestly didn’t go there yet. Things were spinning so fast I really didn’t have time to look down. To me this was the Hand of God walking me through the vertigo of it all, helping me out. I don’t have any other way of explaining it. Someone much wiser once wrote about “a peace that passes understanding,” which is about as close as I can come to describe it.
I’ve wanted to write a book for as long as I can remember. I had no idea my first book would be a memoir about my breast cancer, anymore than I planned on become a walking billboard for breast cancer awareness. But it is what it is: a self exam and a mammogram saved my life. So I think you should read my t-shirt and listen to me when I say check yourself and don’t let cancer steal second base.

Check out this video from Save the ta-tas about a cool product they offer to promote self exams.

And check out this video from Geralyn Lucas, author of Why I Wore Lipstick to My Mastectomy, on mammograms and what a big deal they are NOT:

Cheers (to you and your health) and love,